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In May 2020, the Office of the National Coordinator for Health IT (ONC) finalized federal rulemaking that aimed to increase the access, exchange, and use of electronic health information by patients and their caregivers (1). This rule implements key provisions of the 21st Century Cures Act that require certain certified health IT developers to adopt secure, standards-based application programming interfaces (APIs) that enable individuals to access and manage their health records using a smartphone health app of their choice (2). This brief analyzes data from the Health Information National Trends Survey (HINTS), a nationally representative survey of U.S. adults which was fielded from January 2020 through April 2020. These findings largely reflect pre-pandemic rates of individuals being offered and subsequently using their online medical record, also known as a patient portal. The brief also examines individuals’ use of smartphone health apps to manage health information, and the role of provider encouragement in prompting individuals to use these tools.
Figure 1: Percent of individuals nationwide who were offered and accessed a patient portal, 2014-2020.

Figure 2: Frequency of individuals accessing their patient portal within the past year, 2017-2020.

Figure 3: Methods individuals use to access their patient portal, 2020

Figure 4: Methods used by patient portal users in the past year by frequency of access, 2020.

Figure 5: Percent of patient portal users who performed various functionalities in the past year, 2017-2020.

Table 1: Percent of patient portal users that viewed, downloaded, or transmitted data from their portal in the past year, 2017-2020.
| View, Download or Transmit | 2017 | 2018 | 2019 | 2020 |
|---|---|---|---|---|
| View test results | 85% | NA | 86% | 86% |
| Download online medical record | 17% | 26%* | 27%* | 32%* |
| Transmitted data to at least one outside party | 14% | 17% | 19%* | 21%* |
| Transmit to another healthcare provider | 10% | 14% | 15%* | 17%* |
| Transmit to caregiver | 4% | 4% | 6% | 5% |
| Transmit to service or app | 3% | 3% | 5% | 5% |
Table 2: Reasons for not accessing a patient portal among individuals who were offered but did not use their portal within the past year, 2017-2020.
| Reason for Not Using Online Record | 2017 | 2018 | 2019 | 2020 |
|---|---|---|---|---|
| Prefer to speak to health care provider directly | 76% | 73% | 75% | 69% |
| Do not have a way to access the website | 20% | 10%* | 15%* | 13% |
| Did not have a need to use your online medical record | 59% | 65% | 64% | 63% |
| Concerned about the privacy/security of online medical record | 25% | 14%* | 20%* | 24% |
| No longer have an online medical record | 19% | 13% | 14% | 13% |
| Difficult to login | – | – | 22% | 24% |
| Uncomfortable with computers | – | – | 22% | 20% |
| Have more than one online medical record | – | – | 12% | 8%* |
Figure 6: Percentage of individuals encouraged by their health care provider to use their patient portal, 2020.

Figure 7: Rate of individuals accessing and using their patient portal by whether their health care provider encouraged them, 2020.

Figure 8: Percent of individuals who reported owning and using a mobile health app in the past year, 2020.

Figure 9: Percent of individuals who reported using their health and wellness app to help discuss, track, and/or make decisions regarding their health, 2017-2020.

Individuals’ rates of being offered and subsequently accessing their patient portal increased significantly between 2018 and 2019, but did not change in 2020. About 6 in 10 individuals nationwide were offered access to their patient portal by a health care provider or insurer, and nearly 4 in 10 individuals (38 percent) reported that they accessed their portal at least once in 2020.
Consistent with past trends, individuals who did not access their patient portal most commonly cited their preference to communicate directly with their health care provider and lack of need as reasons for not accessing their record (3-5). However, individuals who were encouraged by their health care provider to use their patient portal reported significantly higher rates of accessing their portal, viewing clinical notes, and exchanging secure messages with their provider compared to those who were not encouraged (5-6). This illustrates the influence providers have with respect to educating patients about the benefits of having access and the value proposition for doing so. ONC’s Patient Engagement Playbook and Guide to Getting and Using your Health Record are resources for providers and patients, respectively, to learn about the benefits of patients having access to their health records and offer tips for how to request access.
Patient portals enabled individuals to electronically communicate with their providers, view their clinical notes, and electronically share their health information with a health care provider. In 2020, about 6 in 10 patient portal users reported exchanging secure messages with a health care provider through their portal. Half of portal users reported viewing clinical notes written by a health care provider. The share of individuals who electronically shared their health information with a healthcare provider increased by seven percentage points (from 10 percent to 17 percent) from 2017. However, rates of individuals electronically transmitting their data to an app or service remains low (5 percent).
Various methods for accessing patient portals have emerged in recent years. While the most common method of accessing a patient portal was by computer (78 percent), nearly 4 in 10 patient portal users accessed their portal using a smartphone health app in 2020. Additionally, portal users who accessed their health information using both a computer and a smartphone health app (22 percent) reported accessing their portal more frequently than those who only used one method. This may indicate that the increased convenience of having access to electronic health information on multiple devices leads to greater use.
Americans also reported using mobile health apps more broadly to manage their health and make decisions about their care. Half of individuals nationwide had a mobile health app on their tablet or smartphone, and more than 80 percent said they used the app within the past year. In 2020, about 7 in 10 individuals with a health app reported they used it to track progress on a health-related goal, and about half reported that they used their app to facilitate discussions with their health care provider and to make treatment decisions.
Making it easier for individuals to access and use their electronic health information is a national priority. The ONC Cures Act Final Rule seeks to make health information from electronic health records more easily accessible to patients through secure, standards-based APIs that can be leveraged to create applications that can help patients manage their health information. Ultimately, ONC hopes these provisions will enable patients to more easily access and use their health information across patient portals offered by different health care providers. Examining how these trends evolve over time will provide insight regarding the extent to which this vision is realized.
Data are from the National Cancer Institute’s (NCI) Health Information National Trends Survey (HINTS). Since 2003, NCI has sponsored HINTS to assess the impacts of health communication, specifically measuring: how people access and use health information, how people use information technology to manage their health and health information, and the degree to which people are engaged in health behaviors.
ONC staff, working with the National Partnership of Women and Families and NCI, developed the survey content related to health IT use for HINTS 5. HINTS 5, Cycle 4 (2020) data were collected from the end of February through the middle of June 2020. The sample design for HINTS 5, Cycle 4 (2020) consisted of a single-mode mail survey, using the Next Birthday Method for respondent selection.
The sample design for the HINTS 5, Cycle 4 (2020) survey consisted of two-stages. In the first stage, a stratified sample of addresses was selected from a file of residential addresses. In the second-stage, one adult was selected within each sampled household. The sampling frame consisted of a database of addresses used by Marketing Systems Group (MSG) to provide a random sample of addresses. Complete data were collected from 3,865 respondents. The final response rate was 37%. Results were weighted to account for non-response and generate national estimates.
The analyses conducted in this data brief primarily focused on questions from sections B and D. The questions asked in the HINTS 5, Cycle 4 (2020) survey can be found at https://hints.cancer.gov/docs/Instruments/HINTS5_Cycle4_AnnotatedInstrumentEnglish.pdf.
1) Office of the National Coordinator for Health IT. ONC Cures Act Final Rule. https://beta.healthit.gov/wp-content/uploads/2025/07/ONCCuresActNPRM.pdf
2) 21st Century Cures Act, section 4006. https://www.gpo.gov/fdsys/pkg/PLAW-114publ255/pdf/PLAW-114publ255.pdf
3) Johnson C, Krakow M, Patel V. (January 2019). Trends in Individuals’ Access and Use of Online Medical Records and Technology for Health Needs: 2017-2018. ONC Data Brief, no.50. Office of the National Coordinator for Health Information Technology: Washington DC.
4) Patel V & Johnson C. (April 2018). Individuals’ use of online medical records and technology for health needs. ONC Data Brief, no.40. Office of the National Coordinator for Health Information Technology: Washington DC.
5) Patel V & Johnson C. (May 2019). Trends in Individuals’ Access and Use of Online Medical Records and Technology for Health Needs: 2017-2018. ONC Data Brief, no.48 Office of the National Coordinator for Health Information Technology: Washington DC.
6) Shimoga SV & Lu YZ. (March 2019). Role of provider encouragement on patient engagement via online portals. Journal of the American Medical Informatics Association, Volume 26, Issue 10.
The authors are with the Office of Technology, within the Office of the National Coordinator for Health Information Technology. The data brief was drafted under the direction of Mera Choi, Director of Technical Strategy and Analysis (TSA), and Talisha Searcy, Deputy Director of TSA.
Johnson C, Richwine C, & Patel V. (September 2021). Individuals’ Access and Use of Patient Portals and Smartphone Health Apps, 2020. ONC Data Brief, no.57. Office of the National Coordinator for Health Information Technology: Washington DC.
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