2023 LEAP in Health IT Projects

Advanced FHIR Capabilities for Advance Care Planning

Project Overview

HEALTHeLINK seeks to demonstrate advanced FHIR capabilities to solve the complex problem of having advance care planning documents aggregated from disparate sources so they are accessible electronically at the point care. HEALTHeLINK will demonstrate benefits from the use of the advanced FHIR features, software development using open-source code, implementation, testing, and piloting under real-world conditions. Efforts will accelerate the adoption of advanced FHIR by illustrating the value of the health information exchange (HIE) for solving complex problems in health care interoperability.

Project Dates

This project began in 2023 and is estimated to be completed in 2025.

Project Goals

The goals of this project are to:

  • Demonstrate advanced FHIR for the onboarding use case to aggregate advance directive (AD) metadata and PDFs from primary care practices and hospitals via electronic health record (EHR) vendors.
  • Demonstrate advanced FHIR for the HIE/interoperability use case.
  • Demonstrate advanced FHIR real time query by adding AD data sources, such as eMOLST (NY repository) and My Directives (national repository).
  • Demonstrate advanced SMART on FHIR app and FHIR application programming interface (API) endpoint use case with primary care providers, hospitals, hospices, and emergency medical services (EMS) personnel.
  • Demonstrate advanced FHIR real time trigger and real time query for emergency departments, pre-visit planning, and AD use cases.
  • Develop HIE AD data analytics and reporting for population health activities, research, and targeted community education to increase AD use and reduce disparities.

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Press Release

To find out more about this project and the other 2023 LEAP in Health IT awardees, read the press release.

CumulusQ an open-source platform for improving FHIR data quality across the ecosystem

Project Overview

The CumulusQ project seeks to cultivate an interoperable health IT ecosystem that enables easy access to high-quality, standardized healthcare data, with a particular focus on the USCDI in FHIR format.

Project Dates

This project began in 2023 and is estimated to be completed in 2025.

Project Goals

The goals of this project are to:

  • Formulate and implement an iterative process to comprehend and assess the quality of both structured and unstructured USCDI elements.
  • Materialize the iterative process from Objective 1 into an easily deployable, open-source infrastructure leveraging FHIR APIs in care delivery sites.
  • Implement the tooling from Objective 2 at multiple sites in the CumulusQ network, and once refined, disseminate a snapshot of the data quality at those sites as a representative benchmark, with root cause analysis of data anomalies.

Learn More

Press Release

To find out more about this project and the other 2023 LEAP in Health IT awardees, read the press release.